Ok, it has been a year since I posted. I totally forgot about this blog. So how am I doing? I am on entyvio infusions every 4 weeks, and canasa suppositories every night. They ae holding back the bleeding, cramping, and awfulness. I am not 100%, but I will take it. I still have some loose BMs, but nothing like I did before the entyvio. I have an appointment coming up next week with Dr. K at Jefferson, and I am afraid she will want to do a SIG or Colonoscopy on me. Maybe not since I am doing better, but we will see. I know she will want me to ween down the Budesonide, which is never good. I don't do well when weening down a steroid. I lose my appetite, get so nauseous that I throw up, sleep round the clock, and get very bad sucking vacuum of death depression until my system adjusts to life without steroids. I also get6 shakes and fevers, so withdrawal in all its finery.
My spiritual path is Gnosticism. I am so much better when I am on a path that is my own and based on my own experience. I have been reading many books and listening to Aeon Byte Gnostic Radio at Thegodabovegod.com
